Beyond Sickle Cell Foundation
We Are More Than a Foundation
We Are a Movement
The Beyond Sickle Cell Foundation was born from Torubein Donyegha’s fight against sickle cell. A survivor of the disease and a boneSome store descrition marrow transplant recipient, she turned pain into purpose and survival into service. We’re not just a foundation, we are a movement for change.
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Free genotype tests conducted
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Schools reached with awareness
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Warriors supported
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Years of founder's resilience
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Our Vision & Mission
Changing the sickle cell narrative
We exist not just to talk about Sickle Cell Disorder but to change the story. We empower warriors to live fully, educate communities to break myths, and provide access to testing, care, and hope.
Our Vision
A world where individuals living with sickle cell disease receive the support, care, and mentorship they need to live healthier, more fulfilling lives.Our Mission
To provide education, medical resources, emotional support, and mentorship to sickle cell patients and their families, empowering them to navigate their journey with hope and resilience.- Build a safe space for warriors
- Celebrate strength, not stigma
- Spark conversations everywhere
About Us
Torubein Donyegha
Founder & Warrior-in-ChiefMeet Our Team
Torubein Donyegha
Founder
Toyin
Vice PresidentToyin is a lawyer with a strong focus on tax and regulatory service consulting. Beyond her professional expertise, she is deeply passionate about helping others and making a meaningful impact in society.
Ware-Ebi Guwor-Niki
Financial DirectorWare-Ebi Guwor-Niki is an accomplished professional with a background in engineering and a strong track record in financial management.
Amughan Erebi Deborah
Legal OfficerAmughan Erebi Deborah is a Legal Practitioner, Solicitor of the Supreme Court.
OFFIONG ANDEM BASSEY
PR DirectorOffiong Andem Bassey is a renowned brand and communications strategist with a strong background and extensive experience in media.
Hope in Action. Healing in Progress.
Our Work & Impact
Outreach & Testing Campaigns
In celebration of our founder’s birthday, we conducted 300 free genotype and blood group tests 100 of which were sponsored by Mrs. Timiebi Guwor, wife of the Speaker of the Delta State House of Assembly. This is only the beginning.
We take testing to the people schools, clinics, marketplaces, churches because early knowledge saves lives.
Warrior Support Programs
We run support circles and mentorship sessions for warriors and families dealing with Sickle Cell. From managing pain to managing dreams, we’re walking this journey together.
School & Youth Engagement
We teach the next generation that knowing your genotype is not fear it’s freedom. We run interactive school workshops, art campaigns, and peer education programs to spread the message creatively.
Make a Donation
Every test we offer. Every warrior we stand with. Every mother we comfort. It all happens because someone like you gave.
Secured payment via Paystack
Meet the Heart Behind the Mission
Torubein Donyegha
Founder & Warrior-in-Chief
Torubein Donyegha is not just a founder; she is a warrior who has turned her personal battle with Sickle Cell Disorder into a national movement for change. Born with Sickle Cell Disorder. Told she wouldn't survive. Now changing lives across Nigeria. Torubein leads with her scars. She leads with her story. She leads so no warrior feels alone again.
Compassion in Action: Join Us Today
Be the Reason Someone Feels Informed, Supported, and Empowered to Live Freely.
Become Volunteer
The Faces of Courage
Our Gallery
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Knowledge is Power
Your Questions Answered
Sickle Cell Disorder (SCD) is a genetic blood disorder where red blood cells become rigid and sickle-shaped, causing blockages in blood flow and leading to pain, organ damage, and increased risk of infection.
You can know your genotype through a simple blood test. We offer free genotype testing at our outreach programs, or you can visit any medical laboratory for testing.
Absolutely! With proper management, medical care, and support, people with SCD can live fulfilling lives. Our founder is living proof - told she wouldn't see 18, now thriving at 28+ and helping others.
You can support by: 1) Educating yourself about SCD, 2) Being understanding during pain crises, 3) Encouraging hydration and rest, 4) Supporting organizations like ours, and 5) Helping raise awareness in your community.